Had an appt with the Maternal Family Medicine Dr in Cape Coral yesterday. It actually went pretty well. It is the first time I have left that office not hysterically crying. The ultrasound tech was very nice and knowledgeable. She used to work for the specialist in Miami that we have been seeing, so she really knew what she was looking for. She found the shunt in the very tiny bladder right where it should be. She also was able to get good look between the legs and showed us his "boy parts", very exciting since we have not been able to see any proof that he is a boy, besides the amnio, since all the ultrasounds were saying "girl". We also found out that Adam weighs about 1 lb 5 oz! Yay, he is growing right where he should be instead of a week behind like he had been!
The Dr came in and he really is always such a downer. He didn't say anything that I didn't already know, but he has a way about him that puts a spin on the information to make it seem a lot more negative than it is. I guess Steve and I are pretty informed about whats going on and do our research, so we know how bad things can get. With this information we have chosen to be positive about it. Maybe some of the other patients don't really know what to expect so he is used to spelling things out and making sure they realize how severe the situation is. I didn't let his negativity get in the way of my happiness.
I told the Dr that I wanted a second opinion about the heart since everyone has been so sure that there is something very wrong with it. He said that he would rather just watch it for about another month and see how it looks because it looked more normal during this ultrasound than it ever has. He thought maybe the big bladder was pushing on the heart causing it too be distorted in the ultrasounds. I guess that could happen, or maybe God is answering our prayers. = )
I am just so over these dr appts and dr's! Our Dr said that he has his "suspicions" about this baby and his "suspicions" are usually not wrong. Whatever. Let's see, he was the one that was pretty confident that Adam had trisomy 18. WRONG! He was pretty confident that Adam had Hypoplastic Left Heart Syndrome. WRONG AGAIN. So, I am taking these "suspicions" with a grain of salt. I have a good feeling about my baby and am not going to let him bring me down anymore. He is not in control, but God is!
Anyway, we also decided that I am most likely going to be giving birth in St.Petersburg so that Adam can go to the NICU there where they have dr's that will be able to fix his urinary blockage, give him dialysis if needed and they also have invasive cardiology if needed. I will give birth in one hospital and then they will take him to the hospital next store. Wish I could be in the same building, but at least I will be in the same city.
On another note, I will be 24 weeks tmrw!! This is when Dr's consider a baby to be "viable". As much as I hate this concept, it's good to know that if I went into labor , then they would attempt to save him! This also marks the point when it is illegal to terminate a pregnancy, so the dr's can stop bringing this up as an option for me after I have told them "NO" repeatedly!
Next appt will be next Wednesday. Will update again then unless something happens between now and then. Please keep us in your prayers and we can keep proving these pessimistic dr's wrong!